Snowy Mountain Peaks

Raising Awareness and Funds for Stiff Person Syndrome Research While Glorifying God's Kingdom

About Meg's Miracles

The mission of Meg's Miracles is to help raise funds and create awareness for Stiff Person Syndrome research at the The Stiff Person Syndrome Center at the Johns Hopkins Department of Neurology so that one day each and every person affected by this debilitating disease will be able to get a better treatment and eventually be cured.

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What is SPS

Stiff-person syndrome (SPS) is a rare acquired neurological disorder characterized by progressive muscle stiffness (rigidity) and repeated episodes of painful muscle spasms. Muscular rigidity often fluctuates (i.e., grows worse and then improves) and usually occurs along with the muscle spasms. Spasms may occur randomly or be triggered by a variety of different events including a sudden noise or light physical contact. In most cases, other neurological signs or symptoms do not occur. The severity and progression of SPS varies from one person to another. If left untreated, SPS can potentially progress to cause difficulty walking and significantly impact a person's ability to perform routine, daily tasks. Although the exact cause of SPS is unknown, it is believed to be an autoimmune disorder and sometimes occurs along with other autoimmune disorders.

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Donation

Along with raising awareness, it is also the goal of all of us at Meg's Miracles to raise money toward SPS research to fund Phase 1 biomarker discovery trials at the Johns Hopkins Stiff Person Syndrome Center, under the direction of Dr. Scott Newsome in Baltimore, Maryland.

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