Meghan Bayer
A Snapshot Into My Life: A Matter of Pride or Survival?
*This was originally written in March 2023 and has lived in the "Notes" section on my phone. The injuries and conversation I write about...
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Meghan Bayer
- Mar 11
- 9 min
Rare Disease Week 2023!
Rare Disease Week 2023 happened to fall on my spring break from graduate school this year, so I had the honor and privilege of joining...
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Meghan Bayer
- Jun 25, 2022
- 12 min
The Dark Side of Stiff Person Syndrome I Never Talk About
Though I acquired SPS at the atypically young age of 16 due to genetic and epigenetic susceptibilities secondary to the HPV jab, there...
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Meghan Bayer
- Nov 1, 2021
- 5 min
Feeding Tube Life Hacks for the SPS Patient
My name is Meghan; also known as the Megalodon. I’m your not-so-typical 25-year-old and I enjoy competing in taekwondo, fishing, camping...
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Meghan Bayer
- Nov 1, 2021
- 13 min
My Journey to Jesus
My Journey to Jesus My name is Meghan Bayer. I am 25 years old and I was born on August 12, 1996. Life was average growing up until I was...
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Meghan Bayer
- Oct 23, 2021
- 4 min
Making the Impossible, Possible for SPS Patients
When I was first put on nasojejunal (NJ) tube feedings* by the gastroenterology (GI) team at my local hospital in 2016, I was too weak to...
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bayermeghan96
- Jul 30, 2021
- 4 min
2020: Pain and Peace
By all accounts, 2020 was going to be “my year” to accomplish a laundry list of goals and tasks not the least of which was advancing my...
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bayermeghan96
- May 23, 2021
- 5 min
When Life Doesn’t Seem To Go Your Way, Stop and “Wait”
I think anyone who has lived life long enough has learned a fundamental lesson: “Life is not always fair.” From an early age, I have been...
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bayermeghan96
- Jan 2, 2021
- 1 min
SMS UK and Ireland News Story: January 1, 2021
Special Thank You to David Blows for the Story!
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bayermeghan96
- Oct 14, 2020
- 3 min
Dear Netflix, What Were You Thinking When Making “Deaf U”?
Netflix, you have had some fantastic series come out lately, but I am sorry to say that “Deaf U” is not among them! Deaf culture is such...
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bayermeghan96
- Oct 14, 2020
- 3 min
Why I Travel 600 Miles to Seek Treatment for SPS
They say, “the journey of a thousand miles begins with a single step.” Well, I didn’t know that when I received my first and only dose of...
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