My Blogs

The Dark Side of Stiff Person Syndrome I Never Talk About

Though I acquired SPS at the atypically young age of 16 due to genetic and epigenetic susceptibilities secondary to the HPV jab, there...

Feeding Tube Life Hacks for the SPS Patient

My name is Meghan; also known as the Megalodon. I’m your not-so-typical 25-year-old and I enjoy competing in taekwondo, fishing, camping...

My Journey to Jesus

My Journey to Jesus My name is Meghan Bayer. I am 25 years old and I was born on August 12, 1996. Life was average growing up until I was...

Making the Impossible, Possible for SPS Patients

When I was first put on nasojejunal (NJ) tube feedings* by the gastroenterology (GI) team at my local hospital in 2016, I was too weak to...

2020: Pain and Peace

By all accounts, 2020 was going to be “my year” to accomplish a laundry list of goals and tasks not the least of which was advancing my...

When Life Doesn’t Seem To Go Your Way, Stop and “Wait”

I think anyone who has lived life long enough has learned a fundamental lesson: “Life is not always fair.” From an early age, I have been...

SMS UK and Ireland News Story: January 1, 2021

Special Thank You to David Blows for the Story!

Dear Netflix, What Were You Thinking When Making “Deaf U”?

Netflix, you have had some fantastic series come out lately, but I am sorry to say that “Deaf U” is not among them! Deaf culture is such...

Why I Travel 600 Miles to Seek Treatment for SPS

They say, “the journey of a thousand miles begins with a single step.” Well, I didn’t know that when I received my first and only dose of...

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